We have over the years provided comments to rules and regulations for data protection. We have especially provided information on the situation in Europe where new regulations is being negotiated. The rules have crucial importance for our access to use of data for research, especially for use of registers like the cancer Registry or the […]
The new developments in the saga on data protection in the EU have rightly generated lots of concern. Many years of investments in infrastructure to help improving our knowledge on how to improve treatment and prevention for diseases and ill health may all be wasted. Here is the latest report on the topic from […]
Evert Ben van Veen has written a summary of the LIBE views and makes comparisons to the proposed data protection regulation. The LIBE proposal will set back epidemiologic research in many European countries if used in the new law. It will threaten free and critical research and the principles of democracy and open societies. […]
At the IEA European Congress in Porto the new EU regulation was debated on Friday September 7th, 2012. At the session the Italian Judge Giovanni Buttarelli was present and took part in a panel debate with epidemiologists from Germany, Italy, Portugal and Denmark. He has worked as the supervisor and advisor (EDPS) for the […]
The matter of data protection regulation has been addressed in a workshop at the last WCE in Edinburgh and the impact that the EU proposal may have on the epidemiologists current work has been debated in some recent papers. The opportunity of harmonising data protection procedures among EU countries has been underlined by some researchers […]
Since our last report, several groups have been active in suggesting modification of the text to facilitate epidemiologic research in Europe.
Epidemiologists have contacted members of the European Parliament from their home countries. Ministers of Research have been contacted, and newspaper articles have been published on the topic.
Not only epidemiologists have been active. Large […]