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Update on Data Protection in Europe: The Saga Continues

EpiBlog

We have over the years provided comments to rules and regulations for data protection. We have especially provided information on the situation in Europe where new regulations is being negotiated. The rules have crucial importance for our access to use of data for research, especially for use of registers like the cancer Registry or the […]

EpiBlog: Support for Reusing Shared Data from ScienceEurope and Nature

EpiBlog

Follow the links below to find 2 recent important documents about use of data for research. These influential bodies (Nature and ScienceEurope) provide strong support for making legislation that allows reuse of data for research.

http://www.nature.com/news/privacy-in-the-digital-age-1.12978 http://www.scienceeurope.org/downloads

—Jørn Olsen

Observational research and informed consent

EpiBlog

Lessons learned from the legal protection of data In Europe

In June 2013 the European parliament will start the postponed voting on the New Regulation on Data Protection. More than 4000 amendments have been proposed and the Regulation is one of the most lobbied texts in the EU history. Not because of the problems it […]

Rapid Response Committee: EU Data Protection Regulation at the EURO Epi 2012, Porto, Portugal

EpiBlog

At the IEA European Congress in Porto the new EU regulation was debated on Friday September 7th, 2012. At the session the Italian Judge Giovanni Buttarelli was present and took part in a panel debate with epidemiologists from Germany, Italy, Portugal and Denmark. He has worked as the supervisor and advisor (EDPS) for the […]

Membership Status in the EU

The count of IEA members from the European region has ranged from 265 to 285 over the last few years. At the end of 2011 there were more than 640 European members, of which 550 were from one of the 15 countries in the European Federation. There was a big contribution from the UK (290 […]

European Early Career Epidemiologists (EYE)

members of the ECE group from Europe, Oceania, South-America and Africa

The idea of organising the European Young Epidemiologists network within the IEA European Epidemiology Federation was presented on the occasion of the European Congress of Epidemiology held in Porto in September 2004 and was received with enthusiasm by young people from several countries. The realisation of this initiative was immediately supported by the IEA-EEF board. Since then, the president of the EYE has been a member of the European Federation board. […]

General Data Protection Regulation

EpiBlog

Proposal for a Regulation of the European Parliament and of the Council on the protection of individuals with regard to the processing of personal data and on the free movement of such data Comments and follow-up of “EpiBlog: Informed consent” and “EpiBlog: A New EU Directive for Data Protection in Europe”[1]

I have […]